The care of the Nurses, Doctors and surgeons are second to none. Not only do they care, plan and look after Florence a huge part of what they do is the pastoral care of the parents. We have been very lucky that we have had the care of some amazing nurses who go out of their way to take their care to the next level! They know who they are and we couldn’t thank them enough 🙏. We have a special place for some nurses, because they have been an integral part of Florence’s journey. Her nurse from PICU who saved her life will always be dear to myself and Tom, we will be hoping he gets her after her next surgery too.
We decided at the start of this journey, that we didn’t want to be quiet and introvert, so at times we have a laugh and banter with our nurses has been an outlet for our stress, people may think that is strange but it is a coping mechanism. The nurses have become our extended family and Florence will have some many ‘Aunties’ and ‘Uncles’ from the hospital. As a long stay patient she gets to know everyone and anyone who walks pay goes and sees her (mainly for her big smiles!).
We have also made friends with some of the other parents who give advice, help you when it’s all too much, and are generally the only other people in the world who can really empathise and sympathise with what you are going through.
Leicester Royal InfirmaryKeepthebeatEast midlands Congenital Heart CentreHeart LinkTiny Tickers “The Tiny Hearts Charity”Little Hearts MatterBritish Heart Foundation